| I A Hughes, C Houk, S F Ahmed, P A Lee, LWPEs1/ESPE2 Consensus Group
The consensus statement on the management of intersex disorders outlines a comprehensive approach involving a multidisciplinary team and emphasizes the importance of avoiding premature gender assignment in newborns. It highlights the need for a long-term, individualized care plan that considers the child's medical, psychological, and social needs. The document proposes replacing outdated terms like "intersex" with "disorders of sex development (DSD)" to better reflect the condition's genetic and developmental complexities. It stresses the importance of using precise terminology that is sensitive to patients' concerns and reflects genetic causes.
The statement discusses the psychological aspects of DSD, including gender identity, role, and orientation, and notes that gender dissatisfaction is more common in individuals with DSD. It emphasizes the importance of considering factors such as prenatal androgen exposure, brain structure, and social environment in understanding psychosexual development. The document also addresses the need for appropriate surgical interventions, focusing on functional outcomes rather than cosmetic appearance, and highlights the risks associated with certain procedures.
The consensus statement recommends that surgical interventions be reserved for severe cases and that decisions should be made in consultation with a multidisciplinary team. It also emphasizes the importance of psychosocial support, including counseling and support groups, to help individuals with DSD and their families. The statement outlines the importance of long-term follow-up, including assessments of physical health, sexual function, and social adjustment.
The document also discusses the risks of gonadal tumors and the importance of early removal in certain cases. It highlights the role of genetic testing in diagnosing DSD and the need for ongoing research to improve understanding and management of the condition. The consensus statement concludes with a call for future studies to improve the understanding of long-term outcomes and to develop more effective treatment strategies for individuals with DSD.The consensus statement on the management of intersex disorders outlines a comprehensive approach involving a multidisciplinary team and emphasizes the importance of avoiding premature gender assignment in newborns. It highlights the need for a long-term, individualized care plan that considers the child's medical, psychological, and social needs. The document proposes replacing outdated terms like "intersex" with "disorders of sex development (DSD)" to better reflect the condition's genetic and developmental complexities. It stresses the importance of using precise terminology that is sensitive to patients' concerns and reflects genetic causes.
The statement discusses the psychological aspects of DSD, including gender identity, role, and orientation, and notes that gender dissatisfaction is more common in individuals with DSD. It emphasizes the importance of considering factors such as prenatal androgen exposure, brain structure, and social environment in understanding psychosexual development. The document also addresses the need for appropriate surgical interventions, focusing on functional outcomes rather than cosmetic appearance, and highlights the risks associated with certain procedures.
The consensus statement recommends that surgical interventions be reserved for severe cases and that decisions should be made in consultation with a multidisciplinary team. It also emphasizes the importance of psychosocial support, including counseling and support groups, to help individuals with DSD and their families. The statement outlines the importance of long-term follow-up, including assessments of physical health, sexual function, and social adjustment.
The document also discusses the risks of gonadal tumors and the importance of early removal in certain cases. It highlights the role of genetic testing in diagnosing DSD and the need for ongoing research to improve understanding and management of the condition. The consensus statement concludes with a call for future studies to improve the understanding of long-term outcomes and to develop more effective treatment strategies for individuals with DSD.